Suzy McPhail has witnessed first-hand how dementia carers are often the ones who “fall through the cracks” after years of caring for their loved one, often with no respite.
The Hamilton teacher and artist ultimately gave up work to become a carer when her mother Marguerite was diagnosed with vascular dementia at 78.
“She became confused, and her memory and judgement were impaired. But she still had so much to give,” smiles Suzy. “Mum was an accountant and could still quickly add up numbers right to the end. But she couldn’t do a simple children’s jigsaw.”
Each morning, Suzy would go to Marguerite’s cottage nearby to wash and dress her, look after her all day and take her home after dinner before tucking her into bed.
Suzy was mum Marguerite’s full-time carer.
“My family were a wonderful support and it was the most rewarding thing I’ve ever done,” says Suzy. “But I was surprised I couldn’t find any activities I could take her to alongside other people with dementia – because socialisation is vital for them – and as a support for carers. So, I made a pledge when Mum passed away that I would help those with dementia and it’s become my passion.”
As a singer and artist, Suzy looked for ways for those living with dementia to be creative. With support from Dementia Waikato, she began offering free weekly classes teaching art and music to those with early-to-moderate dementia living in the community (not in care), and it is now in its ninth year.
“The music sessions are always a full-on party too, singing and dancing to the songs of yesteryear.”
Suzy, 66, then started a support group for Waikato carers called Restore, where a motivational speaker in different fields gives a lecture each month.
“It’s so the carer can feel rejuvenated. I’ve noticed carers often get depression and other illnesses, as the stress and pressure of looking after their loved one is enormous.”
On top of Suzy’s volunteer work, she takes music therapy in a memory care unit at a Summerset Retirement Village, teaches senior dance and sings in vocal trio Fusion.
Suzy’s singing group Fusion are a Christmas hit at retirement villages.
Last year, she organised a Christmas parade through eight Hamilton retirement villages when Covid restrictions threatened to cancel Christmas for the sick and elderly. It’s now become an annual event.
“I love what I do. It’s so uplifting to be able to use your strengths to help those who are less able.”
To get in touch with Suzy, email [email protected]
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